Sign up to be an Esme’s Umbrella Member!
Esme’s Umbrella will soon be starting to produce newsletters, and CBS research is ongoing but finding volunteers for the studies is difficult. Esme’s Umbrella is asking everyone to sign up to be a member so that you can start receiving newsletters and gain your chance to be contacted for research purposes!
Press the link below to download the form, and return to Luke@charlesbonnetsyndrome.uk. If you would prefer a paper form to fill and return please email Luke to request.
Esme’s Umbrella offers a safe shelter for anyone living with Charles Bonnet Syndrome
Whether you’re seeking knowledge about symptoms, seeking solace in shared stories, or striving to spread awareness, we are here to help you on your journey.
Founder of Esme’s Umbrella – Judith Potts
Judith was an actor. She created ‘Act One’ to coach children and adults in voice, acting and presentation.
For nine years she wrote a Health Column for The Telegraph. Her subject was cancer, but when her mother, Esme, developed Charles Bonnet Syndrome (CBS), the condition became part of her Column.
Judith wrote the world’s first article about CBS and continues to write and speak about this perplexing and disturbing condition.
In November 2019, she launched Esme’s Umbrella at the House of Commons, in memory of Esme. The Campaign became at charity in December 2021.
In 2020 Judith won Visionary’s Partners’ Award
Judith is married, with two children, three grandsons, two step-children, five step-grandchildren and a border collie.
Chair and Medical Adviser – Professor Dominic ffytche BSc MBBS MD MRCP MRCPsych
Professor ffytche is an academic old age psychiatrist with a special interest in visual perception and its dysfunction.
He is Professor of Visual Psychiatry at the Institute of Psychiatry, Psychology and Neuroscience, King’s College London – the only such post in the world – and Consultant at the Maudsley Hospital.
Professor ffytche is the globally-acknowledged expert on CBS and number one in the world for visual hallucinations of all types. He was the Principal Investigator on the NIHR-funded SHAPED programme, which was the first piece CBS research and formed our current understanding of the condition.
Trustee – Professor Mariya Moosajee
Professor Mariya Moosajee is Professor of Molecular Ophthalmology at UCL Institute of Ophthalmology and The Francis Crick Institute. She is a Clinician Scientist and Consultant Ophthalmologist in Genetic Eye Disease at Moorfields Eye Hospital and Great Ormond Street Hospital for Children.
Trustee – Helen Khan
Helen Khan is Communications Lead at NIHR Moorfields Biomedical Research Centre. She also runs her own PR Agency.
Patron – Richard Hawley
Richard Hawley is a British actor, best known for Grushko, Prime Suspect, Family Affairs and Love Actually. His work on Coronation Street – playing Johnny Connor, who developed CBS – led to a huge increase in awareness of the condition. Richard’s support for Esme’s Umbrella is enormously appreciated.
